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How to Prepare for An IEP Meeting as a Parent

February 15, 2021 By: Stephanie1 Comment

I have been in more IEP meetings than I can count.

If you do not know what I’m talking about, then consider yourself lucky.

IEP (which is short for “Individualized Educational Plan”) meetings take place between the parents, teachers, administration, and any specialists that need to be involved when a child qualifies for special services through the school system.

I’ve been on all sides of the table. I’ve been a classroom teacher, a gifted specialist with a caseload of about 90 students, and I’m also the mom of five. Three of our children have special needs. My oldest son qualified for his first IEP when he was only 2 years old.

So, in one form or another, I’ve spent the last sixteen years sitting in these meetings.

How to Prepare for an IEP Meeting

Every time another one comes up my husband, without fail, asks me to take the lead because it is just too overwhelming for some people without a background in education. (He is an involved dad and has been to the IEP meetings as well, but he feels intimidated and worries he will miss something important.) If you are new to the process, maybe you can relate to how Eddie feels.  That’s why we are here.  Today I want to share my Top 5 Tips for Parents at IEP meetings. 

  1. Have realistic expectations. The teachers and administrators are only human, and they are working within the constraints of the laws they have to follow. This can be frustrating for everyone involved and sometimes leads to emotions running high. It can be hard to separate your feelings and maintain a professional air when your child’s well-being is on the table, but you will get further if you are able to stick to the facts at hand. Do not insult the teachers personally. They really do want your child to succeed. If you are able to phrase your concerns to be child-centered and give reasons based on facts it will help the meeting go smoothly. State your concern, and then a fact, not an opinion, to back it up. Say things like, “My concern is that Susie struggles with the abstract concepts in math (concern), and right now she is able to use the hands-on manipulatives in class, but not on the tests (fact). I don’t feel like the assessments are giving us an accurate representation of what she knows.” That will help the school understand your position and give them actionable things to do moving forward. It will get you much further than accusatory statements like, “Ms. Smith only has two years of experience and my kid is failing because she isn’t a good teacher.” Even if you do feel that way, the IEP meeting is a time to set goals and make a plan for how to best help your child. When the adults spend the time insulting each other and not addressing the goals and solutions, it doesn’t do anything to help the student.    
  2. Be organized and come prepared. I recommend using a digital file storage like Dropbox and keeping electronic copies of all of your child’s test results, forms, and IEP’s. It is easy to label and organize electronic files in a way that makes sense to you, and you will have them available wherever you go, even beyond IEP meetings, like at the doctor’s office or therapy appointments. You could also use paper copies in a binder, but it will get very cumbersome as your child gets older and there is more and more paperwork to manage. Once, due to human error, we realized that my son had been mislabeled in the computer and the Supervisor of Special Education for our school district didn’t believe me at the meeting when I said our son had a certain diagnosis because that did not match the information in any of her files. I was able to go home and locate the test results and diagnosis and email it to the school, but if you have an app like Dropbox on your phone you may be able to even pull the paperwork up in the meeting to save everyone the time and frustration in those situations.  
  3. Know your rights. In the U.S. children have certain rights granted by federal law, but each state (and even the different counties and school districts within the state) interprets those laws differently and has unique policies of their own. At the beginning of every meeting, you should receive a document called “Procedural Safeguards” that outlines what to do if you feel that those rights have been violated. You also do have the right to call other people into the meeting and bring an advocate with you, but you will need to tell the school in advance. I have acted like an advocate for friends who wanted someone with more experience in their IEP meeting, and as a teacher I have had parents bring advocates or even attorneys into IEP meetings. If you are feeling overwhelmed, you can ask someone with more experience to go with you or reach out to a special education advocate. Having someone in your corner can help alleviate your worries, and advocates understand how to speak the language on both sides and help mediate concerns. 
  4. Bring a notebook, a pen, a water bottle, and a snack. And wear something that looks professional, but is also comfortable. You are probably going to need to bring your I.D. as well to sign in at the school office. I also recommend that you eat a granola bar in the car before you go in. You want to be as comfortable as possible and able to concentrate. The meeting may take quite a while. You do not want to be distracted by an uncomfortable waistband, sore feet in pinching shoes, or a rumbling tummy, but I do recommend that you dress in business casual clothing. A sweater and khakis is perfectly fine. Just remember, the school employees will be dressed in professional work attire, and you may feel intimidated and less likely to speak up if you are wearing something like stained sweatpants that makes you feel embarrassed if you find yourself walking into a conference room full of people wearing suits and dresses. Do not be afraid to take notes or ask questions. A lot is being said, and you want to remember it later. You will also have to sign a few documents and having your own pen readily available can just help the meeting go more smoothly.  (But don’t worry if you forget, there is nothing wrong with speaking up and asking for a few sheets of paper and a pen as the meeting starts so you can take notes.) 
  5. Sit down the night before and spend some time reviewing the paperwork and what you want to say. The school sent home paperwork in advance of the meeting. It is important to review it. (Also, make sure you always sign and return the meeting invitation by its due date!) You want to go into the meeting fully prepared, and this also gives you time to gather any other important information. You might want to gather some copies of graded schoolwork, write a list of your concerns, and just gather your thoughts. It may feel silly, but it can help to do a practice run with a friend, or even in the mirror, so you feel more comfortable speaking up in the meeting. 

After your meeting, it’s a good idea to send an email to the school employees who were present summarizing your understanding of what happened. Just a paragraph or two saying thank you for attending my child’s IEP meeting, just so we are on the same page, here is what I believe I heard today. That way if there was any confusion or misunderstanding, it can be cleared up right away, you have a chance to ask any questions you forgot in the moment, and you also have a record of your communication. 

You can even print or save this blogpost and put it in your files to refer back to later. If you have any other tips for fellow parents attending IEP meetings, please leave them in the comments, and I would love to connect with you on my Facebook page! 

 

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How to Get Your Kids to do Chores- the Easy Way

February 3, 2021 By: Stephaniecomment

I’m not going to claim I know any more than you do about parenting. We all have our strengths, right? And mine decidedly do not lie anywhere near the housework area. But one thing I do know is that I want to raise kids who understand responsibility and teamwork. And I don’t want to live in a pigsty.

Plus, chores are good for kids. They teach important lessons and life skills. That’s why the pediatrician asks about them and so do the therapists and special education teachers. But how do you get your kids to actually do them?

Simple Kids Chore Systen

I feel like I tried everything under the sun (like this homemade dinosaur chore chart) before we stumbled on a system that works for our family, and guess what? Like a lot of other things in life, we discovered that simple truly is best. This is the easiest chore system you are ever going to find. There are no charts, no checklists, no clipboards, nothing. It won’t make your house look perfect, but it will make the kids start taking responsibility for some of the annoying tasks around the house and make you feel a lot less like Cinderella, constantly being the only person doing all of the grunt work. Are you ready to learn my secret?

Assign every person in your family one daily after dinner chore, and three easy chores for Saturday morning. Make sure they are things that are easy and only take a few minutes. That’s it. I know. It’s so ridiculously simple it seems laughable. That’s the entire system, and it truly will change your entire family dynamic.

You may already be doing something similar, but it’s not working. That’s probably because the key to this system is that everyone does their one daily chore at the same time. There is less complaining when the kids know everyone is working and it just becomes part of the routine. The other secret is that the jobs need to be easy and age-appropriate. They shouldn’t take more than five minutes. This is not the time to tell a kid to dust the entire house or mop the kitchen floor. In our family, we use the 5 minutes immediately after dinner. We all get up from the table and do our one chore at the same time.

When we are finished, everyone takes another minute or two and puts away their own laundry. It never takes long because we do laundry every day, so it’s only the three or four things everyone wore yesterday. (I just wash everything together on cold with a high-quality detergent like Tide. I have been doing this for fifteen years and nothing bad has ever come of it.) This system has allowed us to keep up with both the dishes and the laundry without a ton of effort, which in itself is huge! (We have a large family. If you are a smaller family, consider assigning everyone two simple jobs.) Our daily jobs are:

  • Nicholas- wipe the kitchen counter
  • Abigail- unload the dishwasher
  • Donny-straighten the shoe closet
  • Ana-Wipe down the kids’ bathroom counter
  • Penny-Wipe down the dining table
  • Mom- start the washing machine and sort yesterday’s clothes from the dryer
  • Dad- Load the dishwasher

Then we each have three additional chores on Saturday morning. These take slightly longer, but can still be done in around 15 minutes for the kids and less than an hour for the adults. We expect the kids to have their bedroom straight enough to be vacuumed and do these three things. These chores need to be completed and rooms need to be straight before anyone turns on a screen on Saturday morning. The jobs can be anything you want, but should be things the kids can do independently. In our house this looks like:

  • Nicholas- clean off the steps, clear toys from the upstairs hallway, put away LEGOs
  • Abigail- Refill toilet paper in all bathrooms and replace hand towels, wash upstairs windows, carry everyone’s sheets to the laundry room
  • Donny- Sweep front porch, wash downstairs windows, take all stray kids’ toys to the person’s room
  • Ana- Dust, wipe down light switches, straighten the backpack area
  • Penny-Dust upstairs, wipe down doorknobs, straighten the shoe closet
  • Dad- Vacuum, Mop, yardwork (we have a small yard that takes about 20 minutes to mow)
  • Mom- Clean bathrooms, wash sheets, wipe down kitchen

We use allowance for motivation. Our kids earn $1/day, but on days that their chores are not done or their rooms aren’t clean they lose their chance to earn their dollar for that day. They get paid on Saturday mornings, but not until the Saturday chores are finished. We use a Google Doc spreadsheet to keep track of how much they’ve earned throughout the week. Eddie and I can both access it right from our phones. You don’t have to use money, you could do anything that works as motivation for your kids. Maybe a family movie or game night starts when the weekend chores are done?

We do also keep a list of ways they can earn more money by doing additional chores. In our house small tasks like sorting laundry are worth 50 cents, and larger tasks like mowing the lawn are worth $10. A few examples from that list are cleaning the car (inside or outside), picking up the dog mess from the yard, and weeding the garden. Basically, anything I don’t particularly like to do. We have some kids who are very motivated to earn extra money and some who couldn’t care less. If you don’t want to use money as a motivational tool, I find earning time on electronics works just as well. Maybe weeding the garden could earn and extra 30 minutes of screen time?

I am a much happier mom since we started this system, about a year ago. Before that I would try to implement these complicated systems and then get frustrated and feel defeated when they didn’t work. Sure, with this system our house is not perfectly clean all the time (or ever) because kids do kid-level work, but I don’t constantly feel underappreciated and worn out and that is priceless. The division of labor is much better. I no longer spend every day doing chores, just to feel defeated when everything is a wreck an hour later. I do try to do two additional things as part of my morning routine to keep up with the house, but I find that if I add just two small things in combination to our daily chores, that is usually enough. So I might clean the mirrors and the stovetop on Monday, and dust the ceiling fans and clean out the refrigerator on Tuesday. You get the idea. I don’t have a schedule, I just look around and chose two things I can accomplish in less than ten minutes. I try to be finished whatever two things I chose by the time I drop the kids off for school in the morning, so I don’t have to think about housework for the rest of the day. It’s freed up so much time for me to do things I enjoy, like read a book or do some writing.

The one caveat I will add is that this system works much better if you declutter your house first. If your bathroom counters are cluttered with a hundred beauty products, then it is going to be hard for a kid to wipe them down quickly. Spend some time getting your flat surfaces like countertops and dining tables clear, then this system works amazingly well!

Please comment below with more examples of easy, kid-friendly chores. Let me know if you try this system at your house, and don’t forget to pin and share!

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How To Stay

November 11, 2015 By: Stephanie2 Comments

A few days ago I was really discouraged to read an article that was posted during National Adoption Month that talked about a dark side of the adoption process that most people don’t realize is as prevalent as it is. The article told the story of a family who “gave back” or “gave up” their adopted child. The correct term for this is dissolving an adoption, or disruption if it happens before the adoption is finalized, but I couldn’t find either mentioned anywhere. The behaviors described in the article were very typical of any child who has been through a trauma. My heart cracked in half and tears flowed out of my eyes as I read comment after comment commending the family for making the right decision to “give up” and saying that we shouldn’t judge unless we have walked in her shoes and that anyone would have done the same thing. My heart is torn today because I don’t want to judge other families, and maybe God really did have a better plan for this little boy, but this issue is so, so dear to me that I feel I have a responsibility to speak. Especially because it is November.  [Read more…]

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“Fried Egg” Candy: Cooking With Kids

May 13, 2015 By: Stephaniecomment

These cute white chocolate candies are a perfect treat to make with kids!

Last Friday Abby had a friend visiting after school, just for about 40 minutes until her parents got off from work. When I was thinking of a fast activity that would be fun for the girls to do together, I thought about these “fried egg” candies my Aunt Charlotte used to make with us when I was a girl. 

They are fast and easy and kids love to get their hands messy making them. 

fried egg candy ingredients

All you need is a package of white chocolate chips, some pretzel sticks, and some M&Ms or Skittles.We also used a few green ones so that we could have some Green Eggs and Ham candies. These are great to throw together for a last minute bake sale item or for a Dr. Seuss Day activity. 

Start washing everyone’s hands. 😉  Then let the kids separate the yellow M&Ms from the rest. 

separate the yellow ones

 

Then heat the white chocolate chips in a microwave safe bowl for 1 minute increments, taking them out and stirring between each minute until they are melted and smooth. 

Line a baking sheet with wax paper and have the kids help you drop spoonfuls of melted chocolate onto the sheet. 

Put a yellow M&M in the center of each candy to resemble to yolk of an egg, and press two pretzel sticks into the melted chocolate to look like sticks of bacon. 

cooking with kids

Kids really like making these candies because once a grown-up helps melt the chocolate it’s something they can do almost entirely by themselves. The girls thought it was hilarious to make eggs with double and even triple yolks. They were having a great time!

fried egg candy made by kids

This recipe makes about 2 dozen candies. Once your candies are formed, put your baking sheets in the refrigerator for about ten minutes to set. 

Ta-da! 

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Ten Easy Ways To Bond With Your Kids- A FREE eBook

May 7, 2015 By: Stephaniecomment

A few years ago I put together a gift that was exclusive for my newsletter subscribers. 

A group of my favorite bloggers helped me put together some of our favorite traditions and activities to do with our kids and I collected them in an ebook called Ten Easy Ways to Bond With Your Kids. 

In honor of Mother’s Day being this week, this year I am going to release it to all of my readers for free.

Get your copy of the Mother’s Day ebook!

eBook

If you like what you see, I would love to have you sign up for my newsletter or join me on Facebook, Twitter, or Pinterest! 

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Abby is Six!

April 21, 2015 By: Stephanie2 Comments

Yay! Abby is six today! 

silly baby face

It’s hard to believe it’s been that long since we brought home a gorgeous 9 pound baby. 

baby photo

 Would you believe she was less than six weeks old in this picture? She was a big ol’ baby with a BIG set of lungs. They actually had to separate her from all of the other babies in the hospital nursery because her cry was so loud that it kept waking up all of the other babies and causing quite a bit of chaos. She was a challenging baby who hated to sleep and was very particular about wanting things a certain way. (She gets that from her momma.) 

She has grown into a big sister with a kind and compassionate heart. 

sisters

And a little sister who can’t help but love to instigate a little bit of mischief. 

kids hugging photo

She’s always been our most dramatic child. 

silly face

 She loves art almost as much as she loves learning and will spend every waking minute of her free time trying to teach herself something. 

at the piano

 That is, when she’s not too busy dressing up and putting on shows. 

dancing

 She is terrified of tornadoes and spends a lot of time pondering questions that I would have thought beyond her years. 

daddy with daughter

Her favorite colors are pink and purple and she can’t decide if she wants to go to Panera Bread or Chuck E. Cheese for dinner tonight. (I might have tried to persuade her in one direction, but I think she saw right through me.) She’s still obsessed with the characters from the movie Frozen, although, come to think of it, I don’t think we’ve watched it for months. 

Wedding at Maryland vinyard

 

 

 

 

 

 

 

 

 

She was advanced in every area of math on her report card and is very proud of the fact that she can read. She gets annoyed with me when I read the bedtime story to her brother and sister at night because she thinks that she should now and forever be the one who reads all of the books all of the time. She asked her grandparents for her very own desk for her room for as her birthday present. They brought it to us over the weekend and she is in love with it. 

Abby has been known to line up every stuffed animal that we own along the sofa or the fireplace hearth and conduct school for them. If you ask her what she wants to be when she grows up, she will tell you a teacher or a doctor. Lucky for her, there are lots of people who are both. I won’t be surprised if one day she joins their ranks. 

silly faces

In the meantime, Abby is having a lot of fun being six. 

 

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An Update on the Shorts from Target, Six Months Later

April 20, 2015 By: Stephanie85 Comments

An update on the girls' shorts from Target

 Last fall I wrote a blog post about the very short shorts that were available for my very young daughters from a certain very large retailer, and it got a very big reaction. (For anyone wondering how many times I could cram the word “very” into one sentence, the answer is four.) At the time, the pictures I snapped with my iPhone at my local Target became international news. Before I knew it, a crew from Good Morning America was in my living room, Glenn Beck flew me to Texas to appear on his show, and I was getting flooded with requests for interviews and permission to republish those pictures. My post really seemed to touch a nerve with parents who were frustrated with the limited options available to our girls in retail stores. 

After seeing my post, Target’s Public Relations department reached out to me and made several offers. At first we were talking about me being able to speak with one of their designers. Unfortunately, they decided to take that off the table. But they did allow me to send them some detailed feedback via email and they sent me two shipments of samples from their children’s line over the past few months. The shipment with the shorts for my girls from this year’s line arrived a few weeks ago. Yesterday it was finally warm enough for the kids to wear their new shorts. This year Abby is in a size 6 and Penny is in a size 3T. 

girls playing in shorts from Target

little girl wearing Bermuda shorts from Target    

Our peach tree is in bloom, so we went out to the back yard to have the girls model some of the shorts that Target sent. 

peach blossoms

Target shorts

Target Bermuda shorts

Target shorts with longer inseams

Shorts from Target

girls' shorts from Target

To Target’s credit, they did send several pairs of shorts that met my criteria for length. This means they do have options in their children’s line this year for girls who want shorts with inseams longer than an inch. They also sent a pair that are similar to the ones that Penny was wearing in my original post, A Target Intervention on Behalf of my Daughters. The inseam on that pair was about an inch and a half. 

Facebook share image

 

The frustration I have been hearing from literally thousands of moms over the past few months is that when they go into their local Target or other retail stores, the only options on the shelves seem to be the ones with the smaller inseams. We are not sure what the deal is with this. 

From wanting their kids to try on the clothes in the dressing room, to not having internet access, to being on cash-only spending plans, families had lots of reasons for needing to buy their clothes in person from a retail store rather than online. Yet over and over longer inseams popped up as online-only, more expensive, “premium” options– not just at Target, but almost everywhere. Moms are speaking out across social media and asking for different options in their price range. The girls themselves have been studied by the American Psychological Association and report that they do not like the options being offered to them. Princeton has done legitimate scientific studies that prove that women who dress in more revealing clothing are more likely to be seen as objects and less human. (The fact that we don’t want that to be true does not make it any less true, unfortunately.)

No one seems to be able to provide a logical explanation for why we are still seeing this trend on our store shelves, but we definitely are. 

People may say that stores are only selling it because moms are buying it, but for six months now moms have been telling me that they are only buying it because it is often the only thing available on the shelves. 

Here are just a few of the pictures and comments that moms have been sending me:

shorts

booty shorts at Target

short inseams at Target

Shorts comparison at Target

Ellen said, “I have two teenage daughters and shopping for shorts having inseams longer than an inch is like trying to find water in the desert or modesty in Vegas: it’s difficult. It’s sad when boy short underwear is actually longer than shorts meant as outerwear. And shopping in the women’s department is not an option because with the gradual inflation of sizes there, even a size 0 there is too big.” 

Rebecca added, “I can’t find a single pair of shorts for my 15-year-old that are longer than an inch. Although there’s a multitude of boys’ basketball shorts, cargo shorts and jorts for boys that go to their knees, girls are only expected to wear thigh-high short shorts. It’s hard finding a pair of shorts suitable to wear to high school because any of the fashionable shorts available do not pass the fingertip length test.” 

And Courtney commented, “I never thought I’d have to buy boy’s shorts for my modest, long-legged 7-year-old daughter. Shorts that fit around her waist are significantly shorter and tighter. As a culture the clothing industry is sending the wrong message to our girls.” 

If you are listening, retailers, I still think we can do better. 

And if you are a mom who does prefer to shop online, Jess from Don’t Mind The Mess has put together and entire post about where you can find shorts for your girls with longer inseams. 

where to find long shorts for girls

You can also follow along with my Pinterest board, where I’m collecting options recommended by readers. 

Follow Stephanie {Binkies and Briefcases} ‘s board Cute and Modest Options for Girls on Pinterest.

If you’re interested, you can read about all of the original reasons I care about this issue. Some of them might surprise you. 

If you want to keep getting updates from Binkies and Briefcases, make sure to like my Facebook page or follow along on Twitter or Instagram.  

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Perspective from the Lobster Tank

April 15, 2015 By: Stephanie2 Comments

Yesterday we went out to dinner to celebrate because I was honored to be chosen as a BlogHer Voice of the Year honoree this year. The girls put on dresses and Abby insisted on wearing silver shoes that were too small, and we headed out to Red Lobster to gorge ourselves on cheddar biscuits. 

We made our way through our meal, trying to make conversation, and helping the kids constantly put their coats on and take them off again because they couldn’t decide if they were too hot or too cold. We went back and forth to the bathroom (and, not coincidentally, past the lobster tank) three times. At one point we all abandoned our table because all of the kids were whispering  they had an “emergency” at the same time, so we went to take them to the restrooms– again. 

Towards the end of our meal, as we waited for boxes for the food that sat untouched on the kids’ plates, Nick whispered that it was his turn to need the facilities, so Eddie whisked him away. Penny started getting restless. She got out of her seat and walked over to share some food off of Abby’s plate. Abby had chosen orange slices as her side dish. The two of them started making silly faces with the orange peels. A second earlier, Abby had tried to walk over to me, bumped her leg on the table, and for a brief moment, hopped around in the aisle very dramatically. Alone at the table with my daughters, I could feel myself starting to lose my patience.  

Then a stranger was kind enough to stop by our table on her way out the door and give me back some perspective. 

Her husband rushed ahead of her and honestly seemed a bit irritated that she was bothering us. But I was not bothered at all. In fact, I was comforted by her words. 

“I just had to tell you, your children are wonderful. It’s so nice to see.” 

As I thanked her I realized that when she looked at us, she wasn’t looking at my children’s faults, as in that moment I had been. She was looking at the bigger picture. Her mind saw us as a family eating a special dinner. She saw my children sharing their food. She saw us engaging in conversations. Maybe she noticed that we don’t allow our children to take toys or electrons into restaurants, or maybe she didn’t notice that at all because she was too busy seeing my kids engage with each other. Maybe she was close enough to hear my son use his manners when he placed his order. Or maybe she just thought I looked flustered and needed a little bit of encouragement. All of those things could be true. 

I don’t know what it was that made her stop in that moment, but I’m glad that she did. 

Now I can do the same thing for you. Maybe it’s been a while since a stranger stopped to compliment your kids.

But “I just had to tell you, your children are wonderful.”

Perspective From the Lobster Tank

 

 

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Stained Glass

February 6, 2015 By: Stephaniecomment

"Because I almost forgot something in my quest to find a clear window into my son. Stained glass? Is the most beautiful kind of glass." This a a touching piece about raising children with special needs.

Today I sat and filled out a packet that was ten pages long. Medication lists, doctor’s visits, school performance —  the entire history all there in black and white. 

Thinking back, I remember very clearly the feelings of frustration and confusion after Nicholas’ first diagnosis. 

He was only a toddler. We were just beginning to know this giggling, tantruming, bolt of lightning that had walked into our lives.

But as I sat and heard the diagnosis then, as they told me how all of the behaviors– the ones that had raised red flags in the pit of my stomach where my intuition lies– were typical in children who were, well, atypical…I remember how my heart sank because I felt like I might never really know my little boy at all. 

How would I ever have a clear window into his spirit if I could not separate the traits from his various disorders from the real him? 

So many times parents will say that they don’t want their children defined by their disorder. They don’t want their son or daughter thought of as an “autistic child” but rather a little boy or girl who happens to have autism. Or whatever the affliction happens to be. And I thought, “Yes. That!”

But how will I know who he is apart from it? (All of the its.) 

The truth is, six years later, I still don’t. And I never will.

Because he can never be apart from it. It is a part of him, woven into his fabric the same as his freckles or the fact that I am an introvert. We cannot change it. I cannot change it, but more importantly, he cannot change it. Sometimes it would do us all good to take a breath and remember that.

We have spent a great deal of time, energy, money, and frustration trying to get an atypical child to perform more like one of his typical peers. But maybe that is not the answer. Maybe the answer is to take a step back and try to see the whole picture, and not to keep rubbing at one painted out section of the window. 

Because I almost forgot something in my quest for a clear window into my son.

Stained glass?

Is the most beautiful kind of glass.

Raising children with special needs is challenging. It's important to remember to accept your child for who they are.

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To The Mommas of The Special Ones on The Hard Days

January 16, 2015 By: Stephanie82 Comments

 

This post was written by a mom of a little boy with special needs. She really captures what it feels like and makes other moms feel understood.

I understand. That’s all I want to say today, really. 

And I wanted you to know that you are not invisible. 

I know it is the kind of hard that no one else can fathom. 

I know you felt a knife rip through your heart and a wave of relief flood your soul the moment that a doctor or a therapist confirmed what you had already known for a while, but maybe hadn’t been quite ready to admit. 

I know that the novel that sits by your bed at night is not really a novel at all, but a stack of paperwork to be read and signed and returned. 

I know that the first time you walked into that therapist’s office you felt like you must have failed somewhere along the way. But I know you didn’t. Because there you are, sitting in the office waiting room, doing everything you can do get support for that very same child that you think you are failing. 

I know that it is so hard not to harbor resentment in your heart.

I know that you might have had to give up a promising career because there are so many daytime appointments now where a guardian needs to be present. I know that it is putting a strain on your relationship with your spouse. I know that sometimes you have to count the minutes until the end of the play date because it is difficult to be around other mothers while they talk about issues that seem so mundane in comparison to the cards you have been dealt.

I know that your weight is probably different now than it was before you got the news. It might be because you have been going to so many appointments every week that dinner comes from a drive-thru more often than it does not. It might be because you are eating your feelings, or it might be because you have been so sick with grief over what could have been that your appetite has disappeared completely.

I know that you might need a little bit of time to grieve. And I know that if that little bit of time starts to turn into a lot of time, then you shouldn’t be ashamed to talk to someone about it. 

I know that talking to someone, even your husband, might feel pointless sometimes because no one really sees your child like you do. They aren’t there all day every day and they don’t see all of the everything. 

I know that sometimes when you get a break for just a minute and everything seems infinitely easier, it is hard to put up the mental roadblocks against what could have been.

I know that it is almost impossible to stay away from “if only,” but I know that you have to if you want to survive.

You can’t think about the way that things could have been different. You can only deal with the way that they are.    

You are strong. So, so strong. Even when you don’t feel like you are very strong at all. 

The years will pass. At first it will go so slowly and it will be so hard that you think you might never make it out alive. You might feel like punching me right now because I just said “years” and you’re not even sure that you will be able to hold yourself together until dinner tonight. 

If you can’t make it until dinner, then it is all right to cry right now. No, you’re right. It won’t change anything, but I give you permission to feel your feelings anyway. And I promise those feelings will not always be sad ones. 

The job itself will not get easier, but you will get even stronger and smarter and your tool belt will grow. 

There will come a day when you feel confident and equipped. 

And then something will happen that brings you to your knees and the cycle will start again. 

But it will be okay, because then you will know that blossoms can grow in even the stormiest weather. 

By then you will have seen such tremendous growth and progress that the blows will be a little bit easier to take, if only because you know that there is hope. 

To the Mommas of The Special Ones

 If you are looking to be able to connect with other moms who understand, I would love to have you join my Facebook page today. 

Other posts you might like:

a mom describes her son's journey with Sensory Processing Disorder

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Welcome! I’m Steph.

This is a little corner of the internet we like to fill with honesty, heart, and humor. Read More…

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Binkies and Briefcases with Stephanie Giese

Binkies and Briefcases with Stephanie Giese

Stephanie Giese is an indie author based in Florida. She writes stories about realistic problems with humor, heart, and sass. Her work has a strong focus on mental health and consent. Her North Bay small-town romance series is set for release in 2025.

Binkies and Briefcases with Stephanie Giese

4 months ago

Binkies and Briefcases with Stephanie Giese
I know it’s a small thing, but I believe small things can add up to big changes. my entire North Bay series, including Out of Left Field, Right as Rain, and Way Off Base, is free on Kindle from Jan. 30-Feb. 3. Please take the funds you might have spent on my books this week and reallocate them toward the areas in our country that need them the most. Follow creators like Dad Chats who can direct you toward practical needs local to them. I hope my quirky romcoms can bring you some comfort and joy during difficult times, and I hope together we can take small, practical steps toward big changes. ... See MoreSee Less

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Binkies and Briefcases with Stephanie Giese

4 months ago

Binkies and Briefcases with Stephanie Giese
I know there is an overall feeling of helplessness in our country right now. So many of us are at a loss for what to do beyond making phone calls and social media posts (which are still important, but can feel like not enough). I believe strongly in the power of small things adding up to big ones. As one person, I might not be able to do much, but what I CAN do is use my voice and my books to work toward the change I’d like to see. That’s why, for the next five days, from Jan. 30-Feb 3, I’m making the Kindle versions of my entire North Bay series (Out of Left Field, Right as Rain, and Way Off Base) completely free. Art has power, and I do hope these comedies can bring you some comfort and joy in difficult times, but most importantly, I also hope you’ll consider redirecting the funds you might’ve spent on my books and donating instead to one of the many charities working tirelessly in our cities right now. If you are located in an area like Minnesota or Portland, please use the space below to make people aware of the organizations in your area that need help. ... See MoreSee Less
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